Alan Trowhill

Team Trowhill
  • My Goal:
  • $8,000
  • Raised So Far:
  • $8,125
  • # of Donations:
  • 59
$8125 of $8000 goal
+
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Welcome to my fundraising page!

UPDATE: By now, most of you know that Choroideremia (CHM) is a retinal degenerative disease which leads to blindness that my brother, Curt, and I share, but what you may not realize is that both of our daughters are carriers of this disease.  This means the disease does not end with us; it not only affects our children but will cause blindness in future generations of our family.

I will be running an 8K Trail Race on July 23, 2016 to raise money for Choroideremia. You can help me support the Choroideremia Research Foundation (CRF) by making a donation.

Please take three (3) minutes to watch the video below to understand what I am fighting for:

Team CHM

When Curt was diagnosed 25+ years ago, doctors were telling patients with Choroideremia “You will NEVER see a treatment in your lifetime.”

When I started raising money for Team CHM two (2) years ago, there was no treatment for CHM, but with your help, we raised over $5,000. The funds we raised had a MAJOR impact and lead to the second ever gene therapy trial in the United States, a trial which Curt is a part of.

The impact made by the Choroideremia Research Foundation since its first donation of $1500 in 2002 to the gene therapy trials in 2015 is unbelievable.  The 21 minute video below gives a brief history of where they started and where they are now.  The video ends with a clip of Curt (Patient #1) discussing his participation in the gene therapy trials held in Philadelphia, PA (February 2015):

Saving Site

The bottom line is that Choroideremia is an orphan disease, we don’t have any major corporate sponsors, meaning there is no “THEY” group out there, we don’t have millions of dollars behind a cure for Choroideremia, the money that is raised comes from a handful of families and people impacted by Choroideremia.

The research being done and the results of the CHM gene therapy trials will not only help those who suffer from Choroideremia, but it will open the floodgates to finding cures for other diseases such as Parkinson’s, Hemophilia and all sorts of retinal diseases.

Your donations have brought HOPE to thousands of people with CHM and their families.  Families who never thought any of this would ever be possible in their lifetimes.  We need your help raising money to try and stop this disease in its tracks and hopefully find a cure.  As I already stated, EVERY DOLLAR COUNTS!  A $1 donation or $5 donation still helps out tremendously.

If you believe in this cause as much as I do, you can also donate using the Monthly Giving Program or join Team CHM at “Get Involved.”

If you can't make a donation at this point, please help me reach my goal by sharing this page on Facebook and Twitter!

Or, even better, send this e-mail to friends you think might be interested in contributing and include a link to my page!

Thank you so much for your generosity!

HISTORY: As many of you know, Choroideremia (CHM) is a genetic disease that affects my family, more specifically, me and my brother (Curt Trowhill). Curt was diagnosed with CHM at 8 years old and was told he would be blind by age 25. He just turned 33 this year and is now legally blind. CHM has completely taken away his night vision as well as his peripheral vision, it made him turn in his license which means he will never drive again and most recently has forced him to start walking with a cane.

He has been fighting this disease his entire life and refuses to give up hope that a Cure for Choroideremia (CHM) will be found that will halt the progression of this terrible disease and potentially save his sight!

Curt has inspired me to set up this website which raises money for the Choroideremia Research Foundation (CRF). Please help me support the CRF by making a donation. The process is fast, easy, and secure. I truly appreciate any support you can provide. Each donation will help us to save sight and end blindness caused by Choroideremia (CHM). Researchers are close to a curing CHM, but are still in need of critical research funds to finish their work and your donation will help us get there!

I posted Jeff Benelli’s video (above) to help people understand what it’s like to have CHM as well as how it affects those we care about most. Jeff ran four (4) Marathons in five (5) weeks in 2014 to raise awareness of CHM and is yet another reason I have joined Team CHM.

We also have some of the most brilliant minds in the world working on the Cure for CHM.  Dr. Jean Bennett has successfully treated patients with Leber Congenital Amaurosis (LCA) using Gene Therapy which has literally cured blindness. This clinical trial is finally entering Phase 3 with the next step being FDA approval. It will be the first ever Gene Therapy approved by the FDA (United States) and the first ever Gene Therapy for the retina in the entire world! Dr. Bennett is started a clinical trial for Choroideremia (CHM) in Philadelphia in 2015 and Dr. Ian MacDonald is started a clinical trial for CHM in Edmonton later this year.

 

2016 Race Schedule

July 23, 2016 = 8K for Multiple Sclerosis (Trail Run) = Winchester, VA

 

Related Links

What is Choroideremia (CHM)?

LCA Clinical Trial

Choroideremia (CHM) Clinical Trial (U.S.) – Curt’s Blog

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My Story
The Cause
Alan Trowhill is fundraising for Team CHM benefiting Choroideremia Research Foundation.

Welcome to my fundraising page!

UPDATE: By now, most of you know that Choroideremia (CHM) is a retinal degenerative disease which leads to blindness that my brother, Curt, and I share, but what you may not realize is that both of our daughters are carriers of this disease.  This means the disease does not end with us; it not only affects our children but will cause blindness in future generations of our family.

I will be running an 8K Trail Race on July 23, 2016 to raise money for Choroideremia. You can help me support the Choroideremia Research Foundation (CRF) by making a donation.

Please take three (3) minutes to watch the video below to understand what I am fighting for:

Team CHM

When Curt was diagnosed 25+ years ago, doctors were telling patients with Choroideremia “You will NEVER see a treatment in your lifetime.”

When I started raising money for Team CHM two (2) years ago, there was no treatment for CHM, but with your help, we raised over $5,000. The funds we raised had a MAJOR impact and lead to the second ever gene therapy trial in the United States, a trial which Curt is a part of.

The impact made by the Choroideremia Research Foundation since its first donation of $1500 in 2002 to the gene therapy trials in 2015 is unbelievable.  The 21 minute video below gives a brief history of where they started and where they are now.  The video ends with a clip of Curt (Patient #1) discussing his participation in the gene therapy trials held in Philadelphia, PA (February 2015):

Saving Site

The bottom line is that Choroideremia is an orphan disease, we don’t have any major corporate sponsors, meaning there is no “THEY” group out there, we don’t have millions of dollars behind a cure for Choroideremia, the money that is raised comes from a handful of families and people impacted by Choroideremia.

The research being done and the results of the CHM gene therapy trials will not only help those who suffer from Choroideremia, but it will open the floodgates to finding cures for other diseases such as Parkinson’s, Hemophilia and all sorts of retinal diseases.

Your donations have brought HOPE to thousands of people with CHM and their families.  Families who never thought any of this would ever be possible in their lifetimes.  We need your help raising money to try and stop this disease in its tracks and hopefully find a cure.  As I already stated, EVERY DOLLAR COUNTS!  A $1 donation or $5 donation still helps out tremendously.

If you believe in this cause as much as I do, you can also donate using the Monthly Giving Program or join Team CHM at “Get Involved.”

If you can't make a donation at this point, please help me reach my goal by sharing this page on Facebook and Twitter!

Or, even better, send this e-mail to friends you think might be interested in contributing and include a link to my page!

Thank you so much for your generosity!

HISTORY: As many of you know, Choroideremia (CHM) is a genetic disease that affects my family, more specifically, me and my brother (Curt Trowhill). Curt was diagnosed with CHM at 8 years old and was told he would be blind by age 25. He just turned 33 this year and is now legally blind. CHM has completely taken away his night vision as well as his peripheral vision, it made him turn in his license which means he will never drive again and most recently has forced him to start walking with a cane.

He has been fighting this disease his entire life and refuses to give up hope that a Cure for Choroideremia (CHM) will be found that will halt the progression of this terrible disease and potentially save his sight!

Curt has inspired me to set up this website which raises money for the Choroideremia Research Foundation (CRF). Please help me support the CRF by making a donation. The process is fast, easy, and secure. I truly appreciate any support you can provide. Each donation will help us to save sight and end blindness caused by Choroideremia (CHM). Researchers are close to a curing CHM, but are still in need of critical research funds to finish their work and your donation will help us get there!

I posted Jeff Benelli’s video (above) to help people understand what it’s like to have CHM as well as how it affects those we care about most. Jeff ran four (4) Marathons in five (5) weeks in 2014 to raise awareness of CHM and is yet another reason I have joined Team CHM.

We also have some of the most brilliant minds in the world working on the Cure for CHM.  Dr. Jean Bennett has successfully treated patients with Leber Congenital Amaurosis (LCA) using Gene Therapy which has literally cured blindness. This clinical trial is finally entering Phase 3 with the next step being FDA approval. It will be the first ever Gene Therapy approved by the FDA (United States) and the first ever Gene Therapy for the retina in the entire world! Dr. Bennett is started a clinical trial for Choroideremia (CHM) in Philadelphia in 2015 and Dr. Ian MacDonald is started a clinical trial for CHM in Edmonton later this year.

 

2016 Race Schedule

July 23, 2016 = 8K for Multiple Sclerosis (Trail Run) = Winchester, VA

 

Related Links

What is Choroideremia (CHM)?

LCA Clinical Trial

Choroideremia (CHM) Clinical Trial (U.S.) – Curt’s Blog

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About

The Campaign:

Team CHM

Team CHM is a group of athletes committed to Ending Blindness caused by Choroideremia (CHM).   We r

The Organization:

Choroideremia Research Foundation

The Choroideremia Research Foundation Inc. is an international, non-profit organization dedicated to...

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