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104.8 - Supporting Jeff Benelli's Run for Sight

Randy Wheelock

Welcome to my page stayclassy.org/randy! I completed the Philadelphia Half Marathon November 23, 2014 in support of Jeff Benelli's 4 in 5 Campaign (4 marathons in 5 weeks) and Team CHM. So with that being done I am continuing my 7 year quest for a cure. Please help me support the Choroideremia Research Foundation by making a donation. The process is fast, easy, and secure. I truly appreciate any support you can provide. Each donation will help us to save sight and end blindness caused by Choroideremia (CHM). We are close to a treatment for CHM, but are still in need of funds to finish the work and your donation will help us get there! The discoveries made with CRF support not only advance treatments for CHM but for other genetic diseases. If you can't make a donation at this point, please help me reach my goal by sharing this page on Facebook and Twitter. Or, even better, send an e-mail to friends you think might be interested in contributing and include a link to my page. Thanks so much for considering a donation. Perhaps you think my goal is a little lofty, but if you reach a goal you probably didn't set the bar high enough. I credit this goal to my friend JO  :) A long ways to go but, TRY NOT - GET NOT
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$150 raised (0%)
12km Nuclear Race. Help us raise money for the Choroideremia charity that is extremely close to our hearts!

COURTNEY AND DERRAN WILLIAMS

Welcome to my fundraising page! Choroideremia or (CHM) is a rare disease that mainly effects men. The disease causes a gradual loss of vision, starting with night blindness, followed by peripheral vision loss, and progressing to loss of central vision later in life. As many of my close family and friends already know, it is my dad who is effected by this hereditary condition. He experienced a normal childhood, but after having a check up with a doctor whilst serving in the RAF, he was told he had to be medically discharged and had only a few years of sight left. Well here we are, 20 odd years later and a small amount of his sight fortunately remains! However, there is no getting better and no stopping the gradual loss of vision (without a cure that is).  The money you donate will allow for extra research in order to create a cure to prevent any other future generations of children having to experience the daily struggles that come with the disease. My dad is one hell of a man. Even though he struggles to find his way home in the dark and struggles to walk in highly populated environments, he perseveres and puts up with the scuffle at Liverpool Street in Central London in order to work and provide for his family. My dad, in the past, worked away for months on end in Saint Helena and Kuwait. Regardless of his sight loss, he put up without having family support and working in a foreign country to provide for his family. Always putting others before himself. My dad has completed marathons, half marathons and runs 6 miles a day and 13-15 miles every other weekend without fail. Even with the struggles of a condition like CHM, my dad doesn't give up. He's an inspiration to me, our family and to his friends. It breaks my heart when he looks up at me when I speak to him and it takes him time to find my face. It kills me inside when he walks past somebody totally unaware of their presence. It destroys me every time he comes home and tells me he tripped over something today. This disease is taking away the independence my dad is so stubborn to let go off. He can’t go and walk to a new place without it being mid-day, or without somebody guiding him so he does not bump into anything or anyone. He always has me, my mum his family or his friends linking arms with him, guiding him to a table at the restaurant. As well as raising money for a cure, I would just like to raise awareness. Not many people know about this condition. People only recognise somebody with vision loss because of a white stick or a guide dog. Well, there are a third category of people like my dad, somebody either too stubborn to accept help, or somebody not yet at the stage where they need a stick or a dog, but can get by with some assistance. I felt so angry when my dad came to me one day and said some bartender publically humiliated him and told him to get out the pub, assuming he was drunk, because he saw my dad attempting to get down some stairs that had no obvious luminous taping. My dad wasn't drunk, he merely suffered from a disability that is not physically visible, and so people assume why he acts the way he acts, why he walks the way he walks, or why he may bump into fences, cars, or street poles. After the bartender discovered my dad suffered from a condition that affected his vision, he gave him a pint on the house. Well, even a man who loves his pints as much as my dad can’t forget something so humiliating over a free pint. He didn’t go out for weeks after that incident and his confidence of getting around was knocked. So, now you know just a slither of our story. My dad wanted to complete an assault course, a new challenge to tackle, but couldn’t without some kind of support for back up. God help him… I am his support! On May 13th, my dad and I will be completing a 12 km muddy assault course (Nuclear races) in Essex. We will be wearing our team CHM tops to raise awareness and would love all the support and donations we can get! Anything small will always make a difference!  Thanks for visiting our page and reading our story! And remember when you look up and see a sky full of stars at night, some cannot experience that beauty. Remember the importance and fortune of your senses, because life just isn’t the same without them! If you have time, please watch the video on this page. It will completely transform your understanding of CHM, the struggles sufferers endure, and what research is happening right now! Help me support the Choroideremia Research Foundation by making a donation. The process is fast, easy, and secure! If you can't make a donation at this point, help me reach my goal by sharing this page on Facebook and Twitter! Or, even better, send an e-mail to friends you think might be interested in contributing and include a link to my page! Thanks so much for your generosity! :) 
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$968 raised (194%)
140.6 miles to help others see what we see. While achieving my goal of finishing my first full Ironman!

Dean Tyler

Welcome to my fundraising page! Imagine the thrill and exhilaration of the serene Wisconsin surrounds that flash past you as you all work together to cross that finish line. Along with the support, the atmosphere and all the hard wok you have put in to get to this exact moment. Now imagine this breathtaking sight slowly started to fade and was no longer there? This is why I choose Wisconsin and this is why I choose CHM. Not only for the beautiful surroundings and the inner passion, but to know that I am racing for change and to help defeat this frightening disease once and for all. I decided to to make my fundraising effort more personal and fun. So I am having a custom triathlon suit made with the names of each of my donors as well the logos of any corporate sponsors. This will be my way of thanking everyone. If you would like your name on the suit, please donate $20 or more and if you would like to corportate sponsor me, we can chat about this so contact me.  Help me support the Choroideremia Research Foundation by making a donation. The process is fast, easy, and secure. I truly appreciate any support you can provide. Each donation will help us to save sight and end blindness caused by Choroideremia (CHM).  Researchers are close to a curing CHM, but are still in need of critical research funds to finish their work and your donation will help us get there! If you can't make a donation at this point, please help me reach my goal by sharing this page on Facebook and Twitter! Or, even better, send an e-mail to friends you think might be interested in contributing and include a link to my page! Thanks so much for your generosity!
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$2,060 raised (41%)

Fundraising Teams

Angels for Mark

Angels for Mark

2 Members
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$565 raised (113%)
Benelli 4 in 5 Team

Benelli 4 in 5 Team

4 Members
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$16,782 raised (56%)
Bishop McGuinness

Bishop McGuinness

1 Members
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$1,650 raised (330%)